To all of you who follow this blog, I just wanted to post a quick note that Todd had to go to the ER last Wednesday, October 14, 2015 with a temperature of 101.1. They admitted him to Miami Valley Hospital in Dayton, that same evening with a diagnosis of pneumonia; an unusual type of pneumonia. He has struggled for the last several days with high temperatures, up to 103 degrees F., fatigue, low blood counts, and high bilirubin counts. His total bilirubin has been so high, that they had recommended that he stop taking his AG221 for the past two days, to allow the counts to diminish. All the other medications they have him on including the Tylenol has been working his liver very hard. After 4 days and limited testing and treatment in Dayton, we had Todd transfer to the Cleveland Clinic where his bone marrow transplant doctor and trial nurse can better oversee his care and where he can get the advanced care that he needs. At this point, the antibiotics have not been effective in treating his pneumonia, he has had to have one blood transfusion this weekend, and will receive another one today.
We are hoping that the doctors and staff here will be able to determine what type of bacterial infection he has, if there is something else wrong, and get together a game plan to treat him. I'll do my best to update with details as we go along. Thanks.
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